Posted On: 2024-04-20 11:32:52
Every year on April 17th, the world comes together to recognise and raise awareness of haemophilia, an illness that affects millions of people worldwide. World Haemophilia Day acts as a light of unity, education, and advocacy for people affected by this uncommon bleeding illness. It's a day to honour the fortitude, courage, and strength of people and families living with haemophilia.
Haemophilia is a hereditary condition in which the body is unable to effectively coagulate blood. This clotting factor deficit, predominantly Factor VIII (in haemophilia A) or Factor IX (in haemophilia B), causes persistent internal and external bleeding. Even slight injuries can cause serious bleeding, which, if not treated swiftly, can be fatal.
Every day brings new problems for haemophilia patients. Simple actions that many people take for granted, like as playing sports or brushing their teeth, need serious attention and preparation. A little cut or bruise can rapidly turn into a significant medical emergency, requiring prompt care and monitoring. Despite these limitations, people with haemophilia are very resilient and determined. They refuse to let their situation define or confine them, and they face life with courage and hope.
Many people with haemophilia may now live meaningful and active lives while pursuing their hobbies and aspirations because of advances in medical research and treatment. Every person with haemophilia has a network of supporters, including family, friends, healthcare professionals, and advocacy organisations. This support structure is critical for offering emotional encouragement, practical aid, and access to necessary resources. They constitute a community dedicated to the battle against haemophilia, lobbying for better therapies, more access to care, and higher awareness.
Individuals with haemophilia encounter substantial problems, including stigma and misinformation about the disorder. Myths and misconceptions can result in prejudice, social isolation, and inadequate assistance. World Haemophilia Day provides a chance to debunk misunderstandings, educate the public, and promote a more inclusive and understanding society.
As we celebrate World Haemophilia Day, let us renew our commitment to empowering people with haemophilia and their families. Through education, advocacy, and research, we can enhance the quality of life for persons suffering from this illness. Together, we can break down obstacles, promote inclusion, and guarantee that every person with haemophilia has a chance to succeed.
On World Haemophilia Day, Filaantro along with Child Help Foundation aims at celebrating the courage, perseverance, and spirit of those living with haemophilia. Let us stand in solidarity with them, expressing our support, empathy, and compassion. Together, we can build a society in which haemophilia does not impede enjoying life to the fullest—a world in which every individual, regardless of medical condition, is cherished, respected, and accepted.
AUTHOR: ATHIRA PRADEEP NAIR
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